I am a bit frustrated today. For about 5 months now, I have been experiencing mild to sometimes severe pain in the lower back of my head, both sides, all the way across really. It creates tension in my upper neck too. It hurts my head/neck to turn my head too far in either direction. I have seen my doctor but she doesn’t really know what it is, especially since the pain is on both sides. She suggested possibly Occipital Neuralgia (nerve pain) and prescribed me medication to see if it would help, although from what I have read it is rare for that to affect both sides at the same time. The medication made it a little better for a while but now it is getting bad again. I see my doctor again in a couple weeks and she will refer me to a neurologist.
I hate going through this. I am a severe migraine sufferer, so I have been through all the tests and MRI’s before, many times over which have never found anything wrong, other than that I have some nerves that are mixed up (happened in-utero) in the part of my brain that affects personality and the sense. That actually helped make a lot of since about how I am, to me anyway.
Anyway, my doctor didn’t order any MRI’s or anything, mostly because the pain is on both sides. Alcohol affects it and makes it worse but she has never heard of that. According to her, my lymph nodes were not inflamed or enlarged. I know what migraines and tension headaches feel like and this is not that. Not to mention that this has been nonstop for 5 months so far, with varying degrees of pain and discomfort. My husband had thought that maybe is was from emotional stress that led up to the wedding, but the wedding is over now; I have released a ton of stress and emotional pain – and yet the back of head pain persists and seems to be getting worse.
So here is my fear – I see the neurologist, get the tests and they won’t be able to say what is wrong. I am afraid that this is just how I will be now for the rest of my life, in physical pain. It affects a lot of my waking day. I have done a lot of research online and everything seems to usually be related to pain on only one side. I don’t want to keep taking these pills for neuralgia if that’s not even what it is – I hate taking pills. I guess I will just have to wait, explain it all to the neurologist and see what he wants to do. Just so frustrating…